This weekend is Labor Day which means picnics, BBQs, and relaxing afternoons spent enjoying the last few days of summer. For me Labor Day weekend always brings back memories of the Jerry Lewis MDA Telethon. I vividly remember the first one I watched in 1979 because I watched and learned about neuromuscular diseases while we were in the process of packing to evacuate from our home on the coast in Florida as Hurricane David, a deadly Category 5 storm, approached.
Years went by and I did not think much about the MDA Telethon again until I became a firefighter. On Labor Day weekend fire departments across the nation support the MDA with their “Fill the Boot” campaign.
Now many years later I watch the telethon every year with a mix of emotions. This is my 10-year anniversary of being diagnosed with the neuromuscular disease Charcot-Marie-Tooth Disease (CMT). Luckily the effects I experience from CMT are very mild—the worst being some pain with walking or prolonged activity as well as overall fatigue. I am blessed that this disease will not shorten my life, but this is not the case for many of the more than a million Americans who suffer from neuromuscular diseases—diseases such as Amyotrophic Lateral Sclerosis (ALS) which can cause death within 3-5 years.
While my health insurance covers all of my treatment for CMT, it does not cover the research that is needed to find treatments and cures for these diseases. Since many of these diseases have had their genetic cause identified there is a good chance that they can be cured or at a minimum have reduced pain and suffering through stem cell therapy or other forms of treatment.
As you celebrate Labor Day weekend with your families and friends please consider a small donation to the Muscular Dystrophy Association during the telethon, online, online auction, or if you see firefighters collecting for Jerry’s Kids, fill their boots! Every penny raised counts and goes to benefit the lives of more than a million Americans afflicted with neuromuscular diseases.

Some facts:
- MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education.
- The majority of contributions to MDA come from individual donors.
- MDA is the largest nongovernmental sponsor of muscle and nerve disease research.
- Funded almost entirely by individual private contributions, MDA seeks no fees from those it serves.
- MDA dedicates 78.3 cents of every dollar it spends directly to research, services and education.
- MDA sends more than 4,000 youngsters with muscular dystrophy to accessible MDA summer camps each year, at a cost to MDA of $800 per camper. There’s no charge to families.
- Tens of thousands of people visit MDA’s 220 clinics and 35 MDA/ALS centers every year.
- MDA awards research grants to more than 300 teams of scientists and physicians worldwide.
Thanks for taking the time to read this post and have a safe and relaxing holiday!















I Voted
Today is the primary in Indiana and North Carolina. Record numbers of crowds turned out for early voting at the library last week. Normally I vote during early voting, but this year is different. This year I am an undecided voter.
Registered as unaffiliated, I get to choose which primary I vote in. It’s a toss up this year. The Republican candidate is pretty much already a given, and I am all for both of the Democratic front runners. Part of me feels it really doesn’t matter. It’s just a primary.
But something happened on the way to work this morning. I thought about all the women who came before me who fought so hard for our right to vote. Would I be doing them a disservice by not voting? Does apathy ever result in anything good?
I turned my car around and drove to my precinct. The parking lot was full, but I went in anyway. I knew that if I did not go first thing this morning I would keep finding an excuse not to do it. I only waited in line for about 15 minutes. While I was waiting I reflected on the excitement I felt when I turned 18 and registered to vote and felt even more so the first election I voted in.
I quickly but carefully cast my ballot and silently gave thanks to the many volunteers who work at precincts around the country.
To all my friends in Indiana and North Carolina, please go out and vote today!